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Jack's first meeting for adults with Fanconi Anemia was in 2017, where he met a group of over 30 individuals just like him. That was just the beginning since one year later he was invited to serve on a FAdult Advisory Council for the organization has served on since. In 2019, Jack was selected as the winner of the Amy Winn Frohnmayer and Christopher T. Byrd Award for Adults with Fanconi Anemia, which was named after two extraordinary leaders in the FA community who came before him. Jack has traveled across the U.S attending conferences, speaking at fundraisers, and connecting with other individuals with FA.

Winn/Byrd Award for Adults with FA

Jack's journey with Be The Match started on October 25, 2002, when he, 3 years old at the time, underwent a successful Bone Marrow Transplant from an unrelated donor, coordinated by Be The Match. While there's no way you could ever fully repay somebody who saved your life, Jack began advocating for Be The Match at Oakton Community College as a leader of their Phi Theta Kappa Honor Society. This advocacy continued to other colleges and will continue in the future!