Current & Former Affiliations
I started attending the center in October 2021, and become a voting member and partner of the organization in February 2022.
Jack's first meeting for adults with Fanconi Anemia was in 2017, where he met a group of over 30 individuals just like him. That was just the beginning since one year later he was invited to serve on a FAdult Advisory Council for the organization has served on since. In 2019, Jack was selected as the winner of the Amy Winn Frohnmayer and Christopher T. Byrd Award for Adults with Fanconi Anemia, which was named after two extraordinary leaders in the FA community who came before him. Jack has traveled across the U.S attending conferences, speaking at fundraisers, and connecting with other individuals with FA.
Jack's journey with Be The Match started on October 25, 2002, when he, 3 years old at the time, underwent a successful Bone Marrow Transplant from an unrelated donor, coordinated by Be The Match. While there's no way you could ever fully repay somebody who saved your life, Jack began advocating for Be The Match at Oakton Community College as a leader of their Phi Theta Kappa Honor Society. This advocacy continued to other colleges and will continue in the future!
At the age of 3, I received a bone marrow transplant from the life-saving stem cells of an unrelated donor. I was given a second chance at life. Today, I help those undergoing what I and my family went through while educating communities and advocating for those who no longer can. I may not fight crime or have big arms, but I’m always fighting for life and encouraging others to save lives. I am...Captain Marrow! My mission is to give hope and guidance to patients and families undergoing medical procedures by partnering with nonprofit organizations, businesses, and families to inspire others to be their own heroes while educating communities about a variety of medical illnesses. I travel to comic cons, hospitals, fundraisers, and conferences around the U.S and publish comic books based on first-person superhero narratives.
As a recently joined member of the Rare Action Network, Jack will join other NORD representatives in planning the 2021 living rare, living stronger interactive virtual forum geared towards individuals and families affected by rare diseases globally.
Oakton Community College
Des Plaines, IL
Jack made quite the name for himself as a student leader and advocate on campus. Jack was elected as the student trustee, the Student Government Association representative on the college's board of trustees serving a one-year term. Not only did this involve heavy on-campus involvement, including the 8 SGA and college-wide committees he served on, it also meant advocating on behalf of the students he served in state and federal governments. From road trips around the state of Illinois to various meetings ad advocacy events, a conference in New York City for community college trustees nationally, and lobbying for federal action with state representatives and senators in Washington D.C. His career as a student trustee ended with being selected by the Illinois Community College Trustees Association as the 2019 recipient of the Gigi Campbell Student Trustee Excellence Award.
In addition to his student trustee role, Jack restarted the OCCurrence, Oakton's student-run publication, as its Editor-in-Chief after a year-long hiatus for the organization. The new and innovative organization won an award for its digital media platform with 3 of its writers also earning awards for their work.
"Student Trustee Timperley represents the student body at ACCT conference in U.S capitol"
"Oakton Student Receives ICCTA's Gigi Cambell Award"
Shout Out: Jack Timperley, Oakton College graduate, won leadership award
In addition to his other student leadership roles at Oakton Community College, Jack served as the Co-Director of Honors In Action Project for their chapter, Alpha Iota Phi, of the Phi Theta Kappa International Honor Society. Their chapter promoted the academic pillars of the organization on campus, fundraised in their community, volunteered at local organizations, and traveled to Orlando, FL for PTK's international conference. At the conference, the chapter was ranked in the top 100 chapters internationally and won an award for their college project. Jack is proud to be a forever alumnus of PTK and continues to be an advocate for the academic and leadership organization.
