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Jack's first meeting for adults with Fanconi Anemia was in 2017, where he met a group of over 30 individuals just like him. That was just the beginning since one year later he was invited to serve on a FAdult Advisory Council for the organization has served on since. In 2019, Jack was selected as the winner of the Amy Winn Frohnmayer and Christopher T. Byrd Award for Adults with Fanconi Anemia, which was named after two extraordinary leaders in the FA community who came before him. Jack has traveled across the U.S attending conferences, speaking at fundraisers, and connecting with other individuals with FA.

Winn/Byrd Award for Adults with FA